Skip to content

Summer Update

Hey all! As you may or may not have noticed, I’ve been taking a break from blogging for most of the summer. In about two weeks the fall semester starts up and I’m excited to get going with my classes. So here’s a recap of my summer:

MAY

  • Finished spring semester.34859953_10155858655286785_2505407728319463424_o
  • GI appointment- started taking acid-reducing meds and stopped taking all NSAIDs on the assumption my abdominal pain= peptic ulcers.
  • Neurology appointment – talked about trying new migraine drug Aimovig when Dr. L get access, follow up in August for that purpose.
  • First appointment with Urologist because of frequent UTIs.
  • Got job as freelance transcriptionist with Rev. Started doing that.
  • Also got job as freelance copywriter, started doing that as work is available.
  • Went kayaking for the first time!

JUNE

  • Working and stuff.

    IMG_2455

    We did forget to wear our Gandalf costumes though… Next time.

  • Turned 23 (I know, I know, I look like I’m 18 still).
  • Got a sinus infection that took 5 weeks of antibiotics + 1 week of steroids to clear up.
  • Went horseback riding for the first time! What?! It was awesome and it turns out
    I’m not even allergic to horses!
  • Cystoscopy. Umm, yeah not fun, but not as bad as I worked it up to be. Of course everything looked fine so back to square one (no idea) on the UTIs.

JULY

  • Working and stuff.
  • Yeah not too much to report from July.

AUGUST

  • Came to the parental’s for a couple weeks.
  • Appointment with Dr. C (allergist/immunologist). Because of Dr. C and his staff’s tireless efforts and benevolent harassment of Aetna personnel, I got approved to switch to Cuvitru! (I did a free trial of Cuvitru in April and I tolerate it much better than Gamunex)
  • First shipment of Cuvitru, first Cuvitru infusion. No more 3-hour infusions! No more infusion hang-overs and migraines! Woot woot. I really love Cuvitru if you can’t tell.
  • Appt. with Dr. L (neuro) again- got ball rolling to start Aimovig. It’ll probably be 2-6 weeks before I get to start and then it takes 1-3 months to see full effects, but I’m excited to try it!
  • Watched a bit of my little bro’s JV football scrimmage – he scored 3 touchdowns, like a beast, but only after we’d left of course.
  • Next week: get to move into new place at school.
  • Two weeks: fall semester starts!

 

So yeah there’s my summer in a nutshell. It’s been good. Not the most exciting summer, but good. I’ve especially enjoyed working as a freelancer – remote work where I choose my own hours has been so awesome and allowed me to work over the summer for the first time ever!

My tummy is doing better, but after three months I’m still having to take acid-suppression meds morning and night, and stay away from all NSAIDs. Thankfully, I have found some natural remedies that help a ton. I’ll write about those next time maybe.

Hope your summer is going well!

100 Days!

So this week I have reached approximately 100 days since I contracted Whooping Cough! I was sort of hoping that when I reached the 100th day all symptoms would magically disappear, but unfortunately it’s been a bit more complicated than that. Last week—finals week no less— I caught a bad cold, and as the internet warns, every time you catch a cold for a while after you’ve had Whooping Cough the cold will bring some fun coughing, choking, spitting up, wheezing  remnants of the original Whoop. So it has been 100 days and I’m still choke-coughing. But in between colds it really is getting better. I can’t wait for the day—hopefully not too far off now—that I will be able to stop taking my abuterol everyday, multiple times a day.

Despite the cold I made it through finals alright. I also made it to my parent’s AND to see Star Wars on the same day. I payed for that with a three day migraine though, which is why I didn’t get a post up earlier in the week.

My favorite part of Star Wars was the Porgs and the fact that my fifteen year old brother thought that they were begging for food from Chewbacca… Totally failing to recognize that he was eating one of them. Hahahaha.C316D75E-1D87-43DC-894B-4781729BF23F.gif

In a couple minutes I have to head to a follow-up with my neurologist, because what would Christmas break be without a few doctors appointments? When I get back I will relate the plan that he hopefully has to get my headaches more under control. They are much better than they were (constant), but 3-4 migraines per week is still not really where I’d like to be. And my family still refuses to decapitate me so I must look to more conventional methods of easing head pain.

***

Yeah so I didn’t get to this yesterday after the appointment. My doctor was running an hour behind and so by the time I got home it was time for our family evening plans.

Other than the wait the appointment went well. Dr. L is also still not happy with where my migraines are. He decided to keep me on the Prozac at my current dose and add in a new med to the mix—Verapamil. Although the Prozac does help and is amazingly, wonderfully, unbelievably low on side-effects, he is worried that an increase in that would necessitate limiting my use of triptans so as to avoid Serotonin Syndrome. I can’t argue there. So today I will start Verapamil, which is a calcium-channel blocker. I’m definitely anxious, as I am whenever I start a new med (what horrors might it hold for me?!) but I’m also hopeful.

Dr. L has avoided beta and calcium-channel blockers with me so far because they can cause problems in people with asthma. Of the two, I think calcium-channel blockers are lower-risk for asthmatics. Also Dr. L noticed that my heart rate is often high—tis definitely true and I’m not sure why—so Verapamil might help with that too.

Basically Verapamil—like almost every med out there—may hold for me either the key to relief, OR a crap ton of misery.  Thankfully I get the chance to start it while I’m on break, when if things go awry it’s not as big of a hullabaloo.

So on that note… Merry Christmas! And if I don’t write again before 2018- Happy New Year!

ED87D525-6C40-4D9D-8689-0574E3DBFF0E.gif

A Baby Disease Busted My Rib

Ok so remember how I said I had a bad case of bronchitis and then disappeared a couple weeks ago? Well it turns out I did not have bronchitis. I do almost definitely have whooping cough.

Technically the swab results from my seven hour stop off at the ER this past Wednesday

IMG_0379

A rare action shot of an ER patient hoping that the footsteps she hears is someone coming to tell her something useful. Also yes I’m doing hw. French.

haven’t come back yet, but my symptoms are dead on AND there has been a verified case of whooping cough at my school. Add to that my incompetent immune system that doesn’t gain immunity from vacccines annndddd. Boom. You’ve got a twenty-two-year-old with a full-blown case of whooping cough.

From the very first week of school there’s been a bad “cold” going around. I’m thinking that really, most people have had a watered-down case of whooping cough. But luckily for me, other zebras and new-borns, you don’t need to have a full case of whooping cough to give the full-blown thing to someone else.

So what does a full-blown case of whooping cough look like in an adult?

Well first you get a “cold.” It’s really not even that bad of a cold. Then after about a week you start getting a nagging cough. That gets worse for a couple weeks until you find yourself having anywhere from 15-50 coughing fits a day that are so intense you throw up and gasp for air as seemingly infinite amounts of sticky mucus obscure your airways. (In my case the very worst of the attacks only lasted for a little over a week.) Then things get just a little better. Your coughing fits are less frequent. You aren’t choking, gasping and throwing up quite so much when you cough. You stop feeling like you’re going to black out with each coughing fit. That’s where I’m at now. Apparently this bit can last anywhere from 2-10 weeks.

Oh yeah and I forgot to mention–you might cough so hard that you break, bruise or dislocate a rib or so. It freakin hurts, but don’t worry there’s not much they can do about it.

That’s maybe the worst thing about whooping cough–there’s almost nothing that can be done. If caught early enough a course of antibiotics can lessen the severity of the case, but otherwise you basically just have to ride it out.

In China whooping cough is known as the 100 days cough, because it often lasts for three months or longer. So I pulled out my calendar and counted 100 days from the day I got sick. According to Chinese tradition I should be better by December 19th, give or take a few days. I have no idea why I thought that would help. I guess I can start a count down or something. At this point I’m at least a month in so… only 70 more days to go!

This is definitely not how I wanted to start off the semester. Or finish it… But it is what it is. It’s not going to make for the smoothest semester, that’s for sure, but I’ll do my best. And that includes making a sincere effort not to vomit or pass out in class 😉

IMG_0380

We swiped a bunch of the ER vomit bags so we could feel like our trip hadn’t been a total waste. I carry one around everywhere to catch whatever comes up during a coughing fit.

IMG_0363

Doing the nebulizer. This thing is almost as old as I am and it’s still kickin! We call it the Darth Vader machine.

Dermatologist Disappoints; I’m Reminded Why Mom is Banned

About two months ago Hot Doctor did a punch biopsy on a skin lesion on my left hand. A couple weeks later I got the results of the biopsy–inconclusive. So they decided to take the whole thing off. Two weeks ago Hot Doctor cancelled the procedure saying he had decided that it would best for a dermatologist to do it. I waited two weeks to get into the specialist’s and finally yesterday the big day arrived…

Except it was not a big day. It was a stupid day.

Against my better judgement I allowed my mom to accompany me to the procedure because she was worried about me driving myself home afterwards or something. I don’t know. Here’s the problem with that:

  1. She can never completely control herself and let me speak for myself.
  2. I’m super young looking, so when my mom comes to appointments the doctors tend to speak to her over me and just generally fail to treat me like an adult. (If I’m by myself they have to assume that I’m at least eighteen)

 

So perhaps the appointment was doomed from the beginning. But it certainly didn’t improve with the arrival of the dermatologist I’d been waiting two weeks to see. In he walked–neon orange polo, khaki pants, bushy beard and a shiny, bald head–looking as if he just got back from a golf tournament for the color-blind. He wasted no time in establishing respectful communication by complimenting my pretty, bright flower pants as if I were a ten-year-old. Then he furthered this mutual respect by making it obvious how unfamiliar he was with my case, how uninterested he was, and how much of a hurry he was in.

Ultimately we convinced him not to follow through on his initial, extremely helpful impulse to do absolutely nothing. Well actually, no he still did nothing. But he had his nurse do something…another. freakin. biopsy. This time a shave biopsy, in which they just shaved the bump part off the top. The dermatologist theorized that this will make it go away, because everyone knows that if you just cut the top off something and leave the roots it never, ever grows back.

You can probably tell by my tone that I have totally let this go.

The part that I have most easily gotten over is that the dermatologist scared young, inexperienced Hot Doctor into referring me to him instead only to have his nurse do all the actual work. I’m pretty sure Hot Doctor is at least as qualified as a nurse, especially to do just another version of something he already did!

IMG_0303

In the end all I gained from yesterday was another hole in my hand, a firm conviction to never allow my mother to come to any appointment short of surgery ever again (I still love you though mom 😉 ) and a blanket prejudice against all dermatologists. So yeah, big day.